This morning I woke up tired. Once I got my head on half-way straight, I realized that I was pissed off. This weekend sucked, royally. Saturday morning I woke up and thought to myself, Shit! It's meltdown day. I got that sinking, queasy feeling in my stomach.
There has been a meltdown over homework, or time-management, in general, every.single.weekend. Like clockwork over the past few weeks.
I have moments when I feel like a failure. I've never had to ground him or take his phone away. I start thinking, I did it all wrong. I should have disciplined him more. I start to question everything I'm doing and have ever done.
Then again, he has always handled his business. If he didn't, he dealt with the natural consequences without completely falling apart. Now, it just seems stupid to have to resort to taking things from him. He is seventeen. He wants to go to college. He is going to have to learn to discipline himself.
There has been a meltdown over homework, or time-management, in general, every.single.weekend. Like clockwork over the past few weeks.
Anxiety is a nasty bitch. It can't be explained. It doesn't make sense. There is no magic formula or protocol to follow to get rid of it.
We are tweaking and attempting to manage it, with meds and therapy but it's slippery like a soapy, wet dog during bath time.
He melts down about being late, or not making it at all to Tai Chi and Kung Fu class. The irony here is that the meltdown either makes him later, or it completely depletes him of energy to go at all.
Does he really want to go? He says he does, but he keeps sabotaging himself.
He has managed to fall behind in Kung Fu. He should have tested for a yellow belt weeks ago. This is really no big deal, but to him, it leads to more feelings of failure. It's just one more thing that he isn't completing.
The meltdowns are not as severe as they were over the summer. He is more measured. He knows the lines not to cross. However, they are still disturbing, disruptive, and emotionally draining for him and for me. They effect the whole household.
The meltdowns are not as severe as they were over the summer. He is more measured. He knows the lines not to cross. However, they are still disturbing, disruptive, and emotionally draining for him and for me. They effect the whole household.
The concerted amount of patience that I give him leaves me with nothing leftover with the adults who live here, my husband and my mother. The tension in the house is thick and mucky. It's definitely not exactly conducive to romance. We can barely tolerate each other.
There is little energy even for myself. Yoga hasn't seen me in the studio in months. I absolutely will not miss my therapy. It's the one thing I make sure I reserve for me.
I am trying to give Blue every support possible. He's seeing an excellent therapist who is working with him on strategies, time and anger management. Last week we had a Person Centered Planning meeting, where his Facilitator helped him with time-management brainstorming. He has a personal mentor who is also working with him on breaking down assignments, time chunking, and coping skills.
His anxiety...his black and white, all or nothing thinking, seems to keep getting in the way of the application of these skills in heat of the moment. If there is a plan, and something happens to throw it off by 5 minutes, it's over! Can't do it! Can't fix it. Can't change it. Can't move forward or even sideways.
I am trying to give Blue every support possible. He's seeing an excellent therapist who is working with him on strategies, time and anger management. Last week we had a Person Centered Planning meeting, where his Facilitator helped him with time-management brainstorming. He has a personal mentor who is also working with him on breaking down assignments, time chunking, and coping skills.
His anxiety...his black and white, all or nothing thinking, seems to keep getting in the way of the application of these skills in heat of the moment. If there is a plan, and something happens to throw it off by 5 minutes, it's over! Can't do it! Can't fix it. Can't change it. Can't move forward or even sideways.
I try to coax him into the mindset that the plan is more of a guide. There has to be a degree of flexibility in order to use it.
He is blessed with a teacher in his Advanced Placement Calculus class who has been more than accommodating and willing to work with him after school. She is even willing to break down assignments. He does fine at school, but at home...nada! Nothing seems to help.
He is blessed with a teacher in his Advanced Placement Calculus class who has been more than accommodating and willing to work with him after school. She is even willing to break down assignments. He does fine at school, but at home...nada! Nothing seems to help.
He won't consider dropping the class. In fact, he was highly insulted when I brought up the possibility. That would mean that he failed. Mind you, his counselor told me that he doesn't need this class for college unless he plans on being a math major.
I usually give him the benefit of the doubt. I am always trying to find the bright side of a situation. My first instinct is optimism.
I look at autism and anxiety. I study it. I turn it inside out, trying to figure out answers.
What is the motivation behind this behavior?
How can we help him?
What is this mental block that's in his head?
What has him so traumatized that he is almost immobile?
Yesterday, my optimism flew out the window. Fatigue can do that to you. I found myself doubting the authenticity of his meltdowns. I started feeling like he is doing this on purpose.
He is trying to drive me up a fucking wall!
He is being lazy!
He doesn't really want answers. He wants to just sit there on his god damned phone, texting and watching videos!
He is avoiding responsibility!
He begs for solutions, only to meet each of them with objections!
This morning as I drove him to school, I wanted so much to just lay into him.
What is your problem?
Everyone is willing to help you.
Why are you unwilling to help yourself?
This is bullshit!
I need to take away your phone and your privileges!
I need to drop you off at the library and not pick you up until your work is done!
Last year, the library totally worked. If not, then he went to Starbucks or Panera. Why isn't any of this working now?
I'm a grown up. I didn't say of any of the vile things that were in my head. It would only upset him more and start his day at school off in a downward spiral. I kept my thoughts to myself. After I dropped him off, I drove to Starbucks to buy a cup of energy to help me face the day.
Once again, I stifled my anger, which I know isn't healthy. But, what choice do I have? There is no one's ass that I can kick, legally. And if there were, I would probably be too tired to do it.
It was bad enough yesterday when he told me that I was embarrassing him by walking outside the house during his meltdown, because I didn't want to give him an audience. I actually said, "I don't really give a shit that you're embarrassed! I'm tired of listening to you scream!"
I usually give him the benefit of the doubt. I am always trying to find the bright side of a situation. My first instinct is optimism.
I look at autism and anxiety. I study it. I turn it inside out, trying to figure out answers.
What is the motivation behind this behavior?
How can we help him?
What is this mental block that's in his head?
What has him so traumatized that he is almost immobile?
Yesterday, my optimism flew out the window. Fatigue can do that to you. I found myself doubting the authenticity of his meltdowns. I started feeling like he is doing this on purpose.
He is trying to drive me up a fucking wall!
He is being lazy!
He doesn't really want answers. He wants to just sit there on his god damned phone, texting and watching videos!
He is avoiding responsibility!
He begs for solutions, only to meet each of them with objections!
This morning as I drove him to school, I wanted so much to just lay into him.
What is your problem?
Everyone is willing to help you.
Why are you unwilling to help yourself?
This is bullshit!
I need to take away your phone and your privileges!
I need to drop you off at the library and not pick you up until your work is done!
Last year, the library totally worked. If not, then he went to Starbucks or Panera. Why isn't any of this working now?
Once again, I stifled my anger, which I know isn't healthy. But, what choice do I have? There is no one's ass that I can kick, legally. And if there were, I would probably be too tired to do it.
It was bad enough yesterday when he told me that I was embarrassing him by walking outside the house during his meltdown, because I didn't want to give him an audience. I actually said, "I don't really give a shit that you're embarrassed! I'm tired of listening to you scream!"
I have moments when I feel like a failure. I've never had to ground him or take his phone away. I start thinking, I did it all wrong. I should have disciplined him more. I start to question everything I'm doing and have ever done.
Then again, he has always handled his business. If he didn't, he dealt with the natural consequences without completely falling apart. Now, it just seems stupid to have to resort to taking things from him. He is seventeen. He wants to go to college. He is going to have to learn to discipline himself.
I won't be in college with him, telling him to put his phone away so he can get his work done. He has to do this if he wants to be successful. The best way to learn is to fail a few times, to feel the sting of your choices. It's a painful process for a mother to watch.
At this point, any way that I insert myself into the process of helping or teaching him these life lessons, only seems to create more of a power struggle. He has to take ownnership of his life.
So, he works with his therapist, his teachers, counselors and mentors. He wants to be seen as a mature, serious student to them. He can be a baby with me. There is no need to impress.
There comes a time when as a young adult, you have to remove your own mental blocks. You have to take the advice of the professionals and peers that you respect. Your mama knows nothing anyway, right?
Once upon a time, he was fully capable handling his schoolwork and even managing a great part of his daily living skills. I don't know what happened. I don't know if it's fear of becoming an adult, or fear of leaving high school and transitioning to college. It could be unconcious, self-sabotage. Lots of seniors in high school go through that when they are afraid of the new life they are facing.
I don't know what else to do for him, or even if there is anything for me to do.
I just know that I'm exhausted.
At this point, any way that I insert myself into the process of helping or teaching him these life lessons, only seems to create more of a power struggle. He has to take ownnership of his life.
So, he works with his therapist, his teachers, counselors and mentors. He wants to be seen as a mature, serious student to them. He can be a baby with me. There is no need to impress.
There comes a time when as a young adult, you have to remove your own mental blocks. You have to take the advice of the professionals and peers that you respect. Your mama knows nothing anyway, right?
Once upon a time, he was fully capable handling his schoolwork and even managing a great part of his daily living skills. I don't know what happened. I don't know if it's fear of becoming an adult, or fear of leaving high school and transitioning to college. It could be unconcious, self-sabotage. Lots of seniors in high school go through that when they are afraid of the new life they are facing.
I don't know what else to do for him, or even if there is anything for me to do.
I just know that I'm exhausted.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago