The process of raising my boys feels like I’ve already done the work of a lifetime. Red is now twenty-years-old and Blue is seventeen. I think maybe I should just retire now. I deserve it! (I fantasize about this ...a lot.) The reality is the job of raising my children is changing, but it’s not over. It will NEVER be completely over, no matter how much I wish...
(Excuse me for a moment while I cry into my glass of wine.)
Okay, I'm back.
We are all at a point in our lives where we are going through a transition.
(Excuse me for a moment while I cry into my glass of wine.)
Okay, I'm back.
We are all at a point in our lives where we are going through a transition.
Red is out of the house and though he has made tremendous progress, (in case you missed it, read about it here in the popular, "I Can Not Die" post) I am still his nervous habit. When he gets anxious (which is often) he calls me. This can mean way too many phone calls to count on any given day. Even deflecting, turning the cell on silent and not answering each and every call, is still an energy drain. He's like a robocaller, dialing one number to the next between the house, my cell, his dad’s phone, his brother's phone ...it just goes on and on and on.
I think he wants to make sure he is ALWAYS on my mind. Can we say -attention seeking?
As he transitions into becoming a responsible adult, I try to be less of a presence in his life. I try to work more behind the scenes. I don’t attend every meeting and appointment. It seems to help him speak up more when I am not there to be an extension of his own brain. He may not be a full-time job for me anymore, but he is still a piece of work!
I think he wants to make sure he is ALWAYS on my mind. Can we say -attention seeking?
As he transitions into becoming a responsible adult, I try to be less of a presence in his life. I try to work more behind the scenes. I don’t attend every meeting and appointment. It seems to help him speak up more when I am not there to be an extension of his own brain. He may not be a full-time job for me anymore, but he is still a piece of work!
Blue will be a senior next year and totally opposite of Red, he is already working on becoming independent. He wants me as far into the background of his life as possible! I think I may actually talk to him less than his older brother, even though we live in the same house. He entertains himself. More often lately, he calls his friends for his lengthy discussions about how the world should work, according to Blue. Score for me!
He’s doing a lot of drawing lately as a calming/coping mechanism. At the same time, he is slowing down on the video gaming, which usually makes him end up feeling more anxious. He keeps his own schedule, makes his own plans, and even sets up his own appointments. He is driving his life forward academically and socially, and even politically. (He just participated in his first political protest with some kids from his high school). He now belongs to two clubs that meet after school; one that he created, and now a Computer Science Club. I am just the chauffeur and giver of money.
He’s doing a lot of drawing lately as a calming/coping mechanism. At the same time, he is slowing down on the video gaming, which usually makes him end up feeling more anxious. He keeps his own schedule, makes his own plans, and even sets up his own appointments. He is driving his life forward academically and socially, and even politically. (He just participated in his first political protest with some kids from his high school). He now belongs to two clubs that meet after school; one that he created, and now a Computer Science Club. I am just the chauffeur and giver of money.
So as the boys transition, I think it’s also time for me grow up too. There is a pull towards something more than making motherhood the center of my universe. I have the crazy mind of an artist. I feel a certain degree of gravity pulling me towards more creativity in my life. I have scratched this itch with writing this blog during those busiest years of raising my teenagers. I reaped the reward of expounding my creative energy while also having my own therapeutic outlet. Now, there are a few other creative projects that I would like to explore.
The role of mother, wife, my mother’s daughter and caregiver, continue to command a great deal of my energy. However, with Red out of the house, things are a little more quiet for longer periods of time (in-between the phone calls, that is.)
The peace is allowing my inner voice to speak to me more than ever. I'm starting to think of myself more as an individual with dreams, hopes, ambitions, likes, and dislikes.
The peace is allowing my inner voice to speak to me more than ever. I'm starting to think of myself more as an individual with dreams, hopes, ambitions, likes, and dislikes.
I am spending more time inside my head (which sometimes can be dangerous). I have to admit, I spend a lot of this time beating myself up with negative self-talk about what I am not doing or achieving, instead of celebrating what I have accomplished. I realize there are still countless things-to-do, but I spend a lot of time juggling them all around in my mind until I feel overwhelmed. Ultimately, I end up achieving a microscopic amount of my full potential.
Eventually, I find myself falling back into the habit of doing all of the things for all of the people; running them around to their appointments instead of tackling the little projects I want to complete for myself. I’ve been doing that for so many years. It’s not easy to lose the habit.
I have caught myself a couple of times being asked to rearrange my appointments or plans, in order to take care of my family's appointments. Uh, uh. It's not happening! I'm learning to take care of myself. If I fall apart, they're all screwed.
Eventually, I find myself falling back into the habit of doing all of the things for all of the people; running them around to their appointments instead of tackling the little projects I want to complete for myself. I’ve been doing that for so many years. It’s not easy to lose the habit.
I have caught myself a couple of times being asked to rearrange my appointments or plans, in order to take care of my family's appointments. Uh, uh. It's not happening! I'm learning to take care of myself. If I fall apart, they're all screwed.
One of the thoughts I beat myself up with is how much time I waste in a day. My therapist and my closest girlfriends remind me, that I deserve some downtime after being completely stressed for so long. However, the quiet self-reflection makes me I feel like I’m spending a little too much time standing around like a deer in the headlights. Um…which way should I go? Instead of just moving …forward.
In quiet moments, I think about all of the parts of myself that I have let go of in the last few years while I was swimming in a pool of crazy with Red. His last two years in the house were hellacious -with one disruption and eruption after the next. If he wasn’t fighting with his brother, he was fighting with my mother. If he wasn’t fighting with my mother, I was diffusing things between him and his father. It was a constant expulsion of energy!
Recently, a post came up in my Facebook history that I wrote a year ago, "Excuse Me While I Go Left" . The following day I wrote "The Script." After reading both of these I thought, how did I NOTcompletely lose my mind? How did he make it to the age of 20 without either one of us being arrested?
As the dust has started to settle, and the fire after the war comes to a smolder, I reflect...
You made it through one of the most difficult battles of your life. Now, what do YOU want to do?
Better yet, you spent years erasing the essence of yourself. What are the things you DO NOT WANT to do anymore?
You made it through one of the most difficult battles of your life. Now, what do YOU want to do?
Better yet, you spent years erasing the essence of yourself. What are the things you DO NOT WANT to do anymore?
I put together this list -the new philosophy for my life with the underlying mantra, “Take care of Me.”
I will not say the automatic yes.
I will give myself time to think about it, and say NO when that is the right answer.
I do not want to consistently put anyone else’s needs and wants ahead of my own.
I will pay attention to my thoughts and follow my instincts.
I will make myself my priority.
I will listen to my body when it says, “I need rest, exercise or to see a doctor.”
I will not waste time with people, just for the sake of being around people.
There must be an emotional, spiritual connection. If there is no connection, I need to move on.
I don’t want to waste time …period.
I want to live my life with intention and purpose.
As a part of that intention, I will relax without guilt.
I will enjoy the sound of the birds singing outside of my window.
I will sit and just enjoy the breeze and the feel of sun on my skin.
I will stop and take a selfie of my silver hair and share it whenever I want to! I earned every last one of them.
I will sit and just enjoy the breeze and the feel of sun on my skin.
I will stop and take a selfie of my silver hair and share it whenever I want to! I earned every last one of them.
I will smell the roses.
I will just be …as often as I possibly can.
I want to see the ocean -often.
I want to create memorable experiences.
I want to be in service to other parents who are walking with me and behind me on this journey of raising special children.
I will take the opportunity to make life better for someone else, but not at the expense of my own life.
I want to live each day creatively.
I will savor every quiet moment.
I will make my home a sanctuary.
This philosophy is a work in progress, as I am. I give myself credit for doing a better job of taking care of myself.
I now go to *yoga and therapy regularly.
*Lies. Haven't been to yoga in two weeks! I'm going back! I swear!
I bought and am actively using a Passion Planner to keep myself focused on my personal/creative desires, as well as the work of taking care of my family.
I continue to work on showing myself the same kind of love and compassion that I have shown my children for all of these years.
I am making myself a promise to work hard at following my own advice. I hope that you will join me.
I now go to *yoga and therapy regularly.
*Lies. Haven't been to yoga in two weeks! I'm going back! I swear!
I bought and am actively using a Passion Planner to keep myself focused on my personal/creative desires, as well as the work of taking care of my family.
I continue to work on showing myself the same kind of love and compassion that I have shown my children for all of these years.
I am making myself a promise to work hard at following my own advice. I hope that you will join me.
Adelaide Dupont · 284 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 208 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 191 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 111 weeks ago