For so many years I didn't make the time for therapy. It was yet another one of those things that I put on the back burner while I was too busy raising my children, taking them to all kinds of therapy.
Now, I feel like a kid in a candy store every time I pull up to my therapist's office. Me time! Woo hoo! I'm gonna get sane. (In my sing-song voice.)
Therapy is helping me to put self-care on the top of my list. It helps me remember to keep the boundaries that were erased by years of raising two children who demanded that their needs be met immediately.
The other day, I realized that I still find myself holding pee. I have been conditioned to believe that I just don't have time. I always had to be in a hurry to do something for someone, to pick someone up or drop someone off somewhere, to make sure that all of their basic needs were met before I met my own.
I confess for years, while in the thick of raising my children, I didn't take showers as often as I should have. I always felt like I had to choose how to spend my free time. Should I write or take a shower? Should I take a nap or take a long hot bath? Should I eat or take a shower? But mostly, should I get some more sleep? I was always behind on sleep.
I stepped into my therapist's office a few months ago, a blithering mess from the stress of dealing with Red’s transition into adulthood and out of my house. It turns out that constantly being the diffuser of explosions in your home can fry your nerves and kill a few brain cells.
Even when there wasn’t an explosion, I was always preparing for one. I could hear screams in my dreams. When it was quiet, I was wondering why and when the quiet would be jarringly interrupted. If I was behind my closed bedroom door, who would burst through it, or start banging on it at any given moment. I hear footsteps. Are they coming towards me? Shit!
Being a mother for me meant years of trying my best to keep everyone in my house happy or at least from being sad, depressed and angry which of course, was impossible, not to mention, not my job. Making others happy was often at the expense of the things I wanted to do that would make me happy. Are mothers entitled to be happy or is that something you give up in labor and delivery?
That people pleaser in me spilled over into other areas of my life. I'm like Joy from the movie "Inside Out." I want to be happy. I want my friends to be happy. I want my siblings and my parents to be happy. I certainly do not like upsetting or disappointing them. Confrontation must be avoided at all cost. I don’t enjoy arguing. I live with people who seem to live for it. I don’t like being mad at people, and I certainly don’t want people mad at me. When you live with constant bickering and fighting, you try to avoid conflict in other areas of life.
The trouble with all of that is that I found myself constantly giving myself away, one little piece at a time until there was nothing left besides stress, anger and resentment. I found myself always doing things I didn’t want to do. I was slowly losing my mind and becoming an anxious wreck, always taking on everyone else's negative energy and problems.
I am taking some of that power back. I am learning to say, "No. I'm not doing that."
I am taking some of that power back. I am learning to say, "No. I'm not doing that."
When my father passed away two weeks ago, my husband volunteered us to do the obituary for the memorial service. He also tried to get us involved in setting up some kind of scholarship fund. I was like, 'Hell no! I don't have the energy for that.' You go right ahead if you want to. I did the part of the obituary that I wanted to do. I did the research, and I wrote it. I wanted no parts of figuring out the layout. I didn’t worry about how he waited until the last minute to get it printed. It was his deal, not mine. I set a boundary for myself, and I stuck to it.
When I got to L.A. for the memorial service, I didn’t try to do my usual running around here and there and everywhere to see my friends. I let them come to see me at the memorial service. (It was really like a party, at a jazz club and bar, but that's a whole other story.) It was so wonderful seeing everyone, but when they all requested special get-togethers after the fact, I knew there was no way in hell I was going to do it. Sorry, friends. Red ruined that for you. I can’t stretch myself too far anymore. I just don’t have it in me. Instead, I spent the time with my family. And I didn’t even let that stress me out. If I couldn’t see my siblings at every single possible moment, it was perfectly o.k. (Okay, I felt a little guilty the day I didn’t make it down to my dad’s apartment to finish cleaning it out.) I was a little pissed that my husband and son were moving too damned slow to make it happen. (But, I digress.) The point is, the world did not end because I did not stretch myself too far.
Last night when Blue started having a meltdown because he was unable to register for accommodations for the S.A.T. Dad comes into the room and as usual, starts adding fuel to the fire. Ah ah ah! Pump the breaks. Boundaries. I did not allow myself to get sucked into their crap. The difficulty they have communicating right now is THEIR deal, not mine. I can’t fix it. I can’t always diffuse it. I certainly can not take it all on and allow it to drain my energy. They are going to have to work their shit out…or not. I can’t do it for them. I will not do it for them.
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Stolen from my friend Elizabeth Gilbert's FB page. |
I am learning, better late than never to step back, to let go, to not engage, diffuse and try to fix every problem.
I have worked double overtime for years. For now, I don't have to spend every moment doing something on my never ending to-do list. I have the right to:
- have compassion for myself.
- set and keep my boundaries.
- take time for me and not feel the least bit guilty about it.
- allow myself time to grieve for my father in whatever way I need to. (Which may include wearing black around the house, so that people will remember to leave me the f8#% alone.)
- allow myself time to adjust to the transition of letting Red go. Allow him to grow into adulthood, without me holding his hand along every step of the way.
- I can just be.
- I can take a long, hot, showers and not get out until the hot water runs out.
- I can pee every time my bladder says I need to.
- I can be an individual, not just a mom, a wife, a friend, a sibling, daughter, and caregiver.
Most of all, grown-ass folk who can do for themselves should. My family is now full of grown-folk, including the soon to be 17-year-old, who never wants to be told what to do.
It's my hope that at least one person will read this, take just one step back and save yourself from extinction.
Be well or at least, half-way sane.
~Karen
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
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Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago