From the boy who called me a couple of times a week to come get him out of that f-ing high school...
-to the boy who now calls me to process his feelings before he heads back to class.
From the boy who had a meltdown every Wednesday morning because it was uniform inspection day in R.O.T.C.
-to the boy who started his very own club for those who feel like they just don't fit in anywhere else.
From the boy who thought all high school students were complete idiots because they think differently than he does...
-to the boy who decided on his own, to start working on himself, trying to be more positive so that he can get along better with his peers.
Parents in my support community on Facebook have asked, "What do you think is making such a big difference in him?" I think there are a few factors in play:
- His hormones have balanced out some. -In the past couple of years we were in the throes of puberty and raging hormones. I saw my sweet little boy turn into an evil teenager who hated everything. He was more aggressive than ever, especially with his brother who at the time, was bigger than him. It didn't stop him from regularly trying to knock the crap out of him. He is 16 now and I think we've made it past the crazy hormonal changes.
- We have medication that works in place. We had DNA testing, which showed us that he has adverse reactions to SSRI's. Because of his anxiety over the years, we have tried a few of them. They seem to work for a while, and then end up not working, or making things worse. He can't take them. He now takes a psychotropic med that helps balance the anger and aggression. (I won't say specifically which one for his privacy). He also takes a mixture of vitamin supplements:
- Vayarin (a medically prescribed vitamin food that helps with thought processing and focus) *Warning most insurance do not cover it.
- methylfolate B9 (helps with depression)
- vitamin D (mood)
- B6 (anxiety and mood),
- magnesium glycinate ( helps with his restless leg syndrome and sleep) along
- melatonin (sleep).
- Person Centered Planning is a process where we come together with a facilitator, a group of mentors, teachers, parents and friends. (Our facilitator is from the Special Education Department of our school district. As with most special programs, you have to ask for it. They won't volunteer to give it to you.) As a group, we help Blue set individual short-term, life goals that help the him develop personal relationships, participate more in the community and develop the skills to take control of his own life.
As we got him balanced out more hormonally and chemically, he started to get more into the process, scheduling his own meetings, without prompts and inviting more trusted mentors to participate in the process. I am actually very proud of the mentor network that he has developed at school. He is definitely his mama's son! Except for the whole math and science thing. He's excellent. Me ...not so much.
During the first step in each meeting, we go over Celebrations. What has the individual accomplished over the past number of weeks since the last time we met? Nothing is too big or too small.
![]() |
Blue's Celebrations on Paper |
This year in his more balanced state of mind, he is able to concretely see the things that he is accomplishing. He sees that his accomplishments are to be celebrated. He has expanded his planning team beyond just me and dad, to 3 additional teachers/mentors whom he respects. When he hears their praises and then sees them in writing, it makes him feel so much better about himself.
He floored me when he decided to make one of his goals to become a more positive person. He didn't like the way that he was being perceived when he repeatedly started arguments with peers and always had to let everyone know of his opposing views. He wanted to change that.
Another goal that I love that he set was to try to understand the way his brother Red thinks, in hopes to get along with him better. That's a work in progress for both of us. Red definitely has a different perception of the world and his place in it.
I could go on all day about the positive things that I've seen happen with him this year, like his development of friendship with female peers, but that's a whole other blog post. I have to leave something for you to look forward to the next time.
*If you haven't joined my Facebook Support page you really should. There's a link above and on the right.
If you think this post may be helpful to others, please click one or all of the share buttons below.
Love and light...
~Karen
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago