Dear Family,
I think we need to try something new. I know that one of our family members seems to be the biggest agitator -the biggest annoyance and therefore, appears to be the source of a lot of disruptiveness. Well o.k. he is a big source of disruption. He's 18 years old. It would seem like there are certain things he should get by now. Maybe he does get some of it, but old habits die hard, especially if you are still getting a payoff from all of your antics.
Here's the thing, that person let's call him the Disrupter, has a brain that works differently than most of ours. This doesn't make him dumb, stupid or even crazy. However, his thinking is definitely different.
For example, he came out of his therapy appointment yesterday and said, "I guess if I want my life easier and to keep living with you and the sergeant (dad), I'll have to learn how to tolerate you."
Now I know damn well, that is not what his therapist said, but that's the way that he took it. Sounds like a little upside down thinking, right?
Let's not forget his diagnosis...
Sometimes, I think we forget all that HE is dealing with. It's kind of amazing that he is doing as well as he is in all other areas of life, based on all of the things he has going on.
Yes. He drives us all crazy, especially me. We are human. We can only be pushed so far before we are triggered into pushing back. Fight or flight is a normal human response when we feel that we are being attacked. It seems like in this house we often choose fight, instead of flight. Flight would mean walking, perhaps even running away from the attack. Some of us even seem to take flight directly towards the flame, instead of away from it. We seem to take some pleasure in the fight. It's like ...
Ooh! I got him! He's making me angry. He's interrupting me. He's annoying me so ...Bam! Take that!
Even though that fight is such a waste of energy. It certainly doesn't change the behavior of the person with a different neurology.
So what if we were to act like the Christians we profess to be and try to simply turn the other cheek? What if we approach the person who seems to think differently than we do, with love and compassion instead of anger and further agitation. Do you think that may reduce a small portion of his anger and disruptiveness? I certainly don't think it will erase it. It may mitigate it by a margin, therefore, making all of our lives just a little bit more peaceful.
Mitigate ...I love that word. (Yes. I am in love with words.) It means to lessen, make less severe or painful. (Yes. He can be painful.)
There are certain words in my vocabulary that I remember the exact first time that I heard them, or at least actually became aware of their definition. I remember the word mitigation distinctly.
I used to work for a mortgage bank as a Loan Analyst. (Yes. Once upon a time, I had a job that paid real money. We even got time off, and vacations. It was great!) Our department was called Loss Mitigation. It was my job to look at loans that we were about to foreclose on to determine how we could lessen our loss. When a bank takes a property back through foreclosure, there are a lot of expenses incurred. If there was a way to lessen those expenses, then we may do something called a Short Sale, thereby taking a payoff for less than what the current owner of the property actually owed us. This would have to be more than we would get if we actually foreclosed.
What if we could mitigate the amount of arguments, fights screaming and disruption in out house. Wouldn't that be helpful?
What if we could lessen our pain, and my headaches?
What if we could mitigate the number of times that I (the mom) have to step in to referee between everyone in this house? And I do mean everyone, including the adults who supposedly are not on the autism spectrum.
Why do we buy into the negative behavior and try to teach a lesson by displaying more negative behavior.
What are we teaching?
What are we modeling?
We are modeling? You act ugly. I can act uglier.
Is that going to motivate him to change?
Is that promoting an atmosphere of peace?
One of us or more of us may be more resistant to change than others of us. One of us may not have the ability to readily change his thinking, just because we want him to. We can't control that can we? But what can we control? We can control our reaction to him.
If one person is out of control for whatever reason, and you have the ability to remain in control, why not exercise that ability whenever possible? I'm not saying it's always possible, but there are some places we just don't have to go. For instance ...
Do we have to go into name calling or cursing, just so that we can make the person who is not in control, or does not have the correct thought process, even more angry?
Do we meet irrational thought by adding insult to injury?
How does that make things any better?
I know we're all tired and we're all frustrated. But it seems to me, that the more we give in to being upset by his antics, the more he loves it. What if we all take our power back, especially the 3 adults in our house. Imagine the example we would be setting for the child in our house who still needs to learn how to do this.
Let's give it a try and see how we all feel 2 weeks from now.
Let's meet anger with love. It will take energy. Trust me. I've been trying this for a few days. It won't be easy. We won't be perfect, but let's try. Let's see if we can mitigate our pain.
Sincerely,
Your Tired, Loving, Wife, Daughter, Mother & Referee
I think we need to try something new. I know that one of our family members seems to be the biggest agitator -the biggest annoyance and therefore, appears to be the source of a lot of disruptiveness. Well o.k. he is a big source of disruption. He's 18 years old. It would seem like there are certain things he should get by now. Maybe he does get some of it, but old habits die hard, especially if you are still getting a payoff from all of your antics.
Here's the thing, that person let's call him the Disrupter, has a brain that works differently than most of ours. This doesn't make him dumb, stupid or even crazy. However, his thinking is definitely different.
For example, he came out of his therapy appointment yesterday and said, "I guess if I want my life easier and to keep living with you and the sergeant (dad), I'll have to learn how to tolerate you."
Now I know damn well, that is not what his therapist said, but that's the way that he took it. Sounds like a little upside down thinking, right?
Let's not forget his diagnosis...
- PDD/NOS (pervasive developmental disorder -not otherwise specified). In other words Autism which is a neurological difference. His thinking is different!
- ODD (oppositional defiant disorder) He has been known as oppositional and defiant since he was a toddler! Since before he could talk! This is the one diagnosis they got right early on.
- ADHD (Attention Deficit Hyperactivity Disorder). He is acts impulsively, without thinking of the consequences of his actions. He is constantly moving in some way. He is constantly singing! This was on his 3 year-old neurology evaluation.
- Mood Disorder or Bi-Polar/NOS (signs include -depression, OCD obsessive compulsive disorder, easily angered, etc.)
Sometimes, I think we forget all that HE is dealing with. It's kind of amazing that he is doing as well as he is in all other areas of life, based on all of the things he has going on.
Yes. He drives us all crazy, especially me. We are human. We can only be pushed so far before we are triggered into pushing back. Fight or flight is a normal human response when we feel that we are being attacked. It seems like in this house we often choose fight, instead of flight. Flight would mean walking, perhaps even running away from the attack. Some of us even seem to take flight directly towards the flame, instead of away from it. We seem to take some pleasure in the fight. It's like ...
Ooh! I got him! He's making me angry. He's interrupting me. He's annoying me so ...Bam! Take that!
Even though that fight is such a waste of energy. It certainly doesn't change the behavior of the person with a different neurology.
So what if we were to act like the Christians we profess to be and try to simply turn the other cheek? What if we approach the person who seems to think differently than we do, with love and compassion instead of anger and further agitation. Do you think that may reduce a small portion of his anger and disruptiveness? I certainly don't think it will erase it. It may mitigate it by a margin, therefore, making all of our lives just a little bit more peaceful.
Mitigate ...I love that word. (Yes. I am in love with words.) It means to lessen, make less severe or painful. (Yes. He can be painful.)
There are certain words in my vocabulary that I remember the exact first time that I heard them, or at least actually became aware of their definition. I remember the word mitigation distinctly.
I used to work for a mortgage bank as a Loan Analyst. (Yes. Once upon a time, I had a job that paid real money. We even got time off, and vacations. It was great!) Our department was called Loss Mitigation. It was my job to look at loans that we were about to foreclose on to determine how we could lessen our loss. When a bank takes a property back through foreclosure, there are a lot of expenses incurred. If there was a way to lessen those expenses, then we may do something called a Short Sale, thereby taking a payoff for less than what the current owner of the property actually owed us. This would have to be more than we would get if we actually foreclosed.
What if we could mitigate the amount of arguments, fights screaming and disruption in out house. Wouldn't that be helpful?
What if we could lessen our pain, and my headaches?
What if we could mitigate the number of times that I (the mom) have to step in to referee between everyone in this house? And I do mean everyone, including the adults who supposedly are not on the autism spectrum.
Why do we buy into the negative behavior and try to teach a lesson by displaying more negative behavior.
What are we teaching?
What are we modeling?
We are modeling? You act ugly. I can act uglier.
Is that going to motivate him to change?
Is that promoting an atmosphere of peace?
One of us or more of us may be more resistant to change than others of us. One of us may not have the ability to readily change his thinking, just because we want him to. We can't control that can we? But what can we control? We can control our reaction to him.
If one person is out of control for whatever reason, and you have the ability to remain in control, why not exercise that ability whenever possible? I'm not saying it's always possible, but there are some places we just don't have to go. For instance ...
Do we have to go into name calling or cursing, just so that we can make the person who is not in control, or does not have the correct thought process, even more angry?
Do we meet irrational thought by adding insult to injury?
How does that make things any better?
I know we're all tired and we're all frustrated. But it seems to me, that the more we give in to being upset by his antics, the more he loves it. What if we all take our power back, especially the 3 adults in our house. Imagine the example we would be setting for the child in our house who still needs to learn how to do this.
Let's give it a try and see how we all feel 2 weeks from now.
Let's meet anger with love. It will take energy. Trust me. I've been trying this for a few days. It won't be easy. We won't be perfect, but let's try. Let's see if we can mitigate our pain.
Sincerely,
Your Tired, Loving, Wife, Daughter, Mother & Referee
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago