One would think there is nothing more simple or pleasurable than a walk in the park on a beautiful, mildly cool, fall day. Then again, if you know my family, things that look simple on the outside can quickly become complex once you peel back the layers and get to the inside.
At the beginning of this week, Blue made a list of thing to do on this Thanksgiving break. On the top of this list is to go hiking at a nearby trail. He so needs exercise as the medication he's taking has helped him gain a few pounds. Supposedly, exercise is also it will be great for his not-so-lovely teenage mood. On this lovely afternoon, he has actually been in a pretty good mood because we have company over. He has a little sister for the day. They have been laughing, playing and challenging each other all day.
My girlfriend has to work and we love to borrow her daughter whenever we can. Skye is 8 years-old, smart, gorgeous an with a quick wit...definitely my kinda girl. Actually, almost any little girl is my kind of girl. I am surrounded by testosterone most of the time. Sweet little girls are refreshing. I made her promise not to change when she becomes a tween. She promised she would not change...but then again, so did Blue.
At the beginning of this week, Blue made a list of thing to do on this Thanksgiving break. On the top of this list is to go hiking at a nearby trail. He so needs exercise as the medication he's taking has helped him gain a few pounds. Supposedly, exercise is also it will be great for his not-so-lovely teenage mood. On this lovely afternoon, he has actually been in a pretty good mood because we have company over. He has a little sister for the day. They have been laughing, playing and challenging each other all day.
My girlfriend has to work and we love to borrow her daughter whenever we can. Skye is 8 years-old, smart, gorgeous an with a quick wit...definitely my kinda girl. Actually, almost any little girl is my kind of girl. I am surrounded by testosterone most of the time. Sweet little girls are refreshing. I made her promise not to change when she becomes a tween. She promised she would not change...but then again, so did Blue.
After walking for miles through the streets and along the bay in San Francisco on my vacation, I think to myself, this walk will be a breeze. Let's do it! Walking is much more fun when there is something to see, instead of walking around a boring track or on a treadmill. Communing with nature is good for the soul. So off we go.
Harry our little Maltese is also along for the walk. I didn't really think he could keep up, but the kids, especially Blue, insisted that he come.
Harry our little Maltese is also along for the walk. I didn't really think he could keep up, but the kids, especially Blue, insisted that he come.
I have my I-pod earphones in one ear, walking in rhythm to the sound of the "Black-eyed Peas". I am using the other ear to hear the kids if I need to. Me and Skye, my daughter for the day, are a few steps ahead of Blue.
Suddenly, he starts yelling at us...
"Wait...slow down!"
We are literally just a few steps ahead of him. I wonder why he sounds so angry? He was just fine moments ago. We keep walking at a moderate pace. I can tell his attitude has definitely turned to crap. We reach a big blue pole, which is an emergency phone station. Blue wants to stop here. Skye wants to keep going...so do I.
"You always want to stop here. Come on this is an adventure. We need to keep going," she says.
We compromise and take a rest stop.
Suddenly, he starts yelling at us...
"Wait...slow down!"
We are literally just a few steps ahead of him. I wonder why he sounds so angry? He was just fine moments ago. We keep walking at a moderate pace. I can tell his attitude has definitely turned to crap. We reach a big blue pole, which is an emergency phone station. Blue wants to stop here. Skye wants to keep going...so do I.
"You always want to stop here. Come on this is an adventure. We need to keep going," she says.
We compromise and take a rest stop.
We are all sitting on a park bench. The two of them are having shall we say, an exchange of ideas. He is bitching and moaning because he wants to stop and turn around. She is telling him he needs to push through it, in her sweet little girl voice. Hiking was his idea after all.
He is completely argumentative and combative. He accuses her of arguing with him to which she replies, "I'm not arguing. I'm just trying to have a conversation!"
Ah hah! This is the exact sentiment I have all the time when I am trying to talk with Blue and his father. If you are not in complete agreement with them ..thinking the very same thoughts, in his mind you are arguing with him! Finally, I have proof that I am not crazy! I just need another sane person to live in the house with me to help me prove it!
Did I tell you I love this girl?!
The next thing I know Blue takes off...and not in the direction of the car. Suddenly, he is determined to make it to the end of the trail. He gets nearly a quarter of a mile ahead of us, in the twist and turns of the trail, to the point where I can't see him anymore. It's starting to get dark. I realize that if we don't start heading back soon, we will find ourselves walking back in the moonlight. I finally get to a point where I can see him. I call out to him yelling his name, waving for him to come back.
"We have to head back now! It's going to get dark!"
He hesitates, but decides to head back in our direction.
Once we are walking together again, the two of them are slightly ahead of me. I here Stell say...
"I'm sorry Blue. I didn't mean to make you angry."
My heart melts a bit. I think...this is what it would be like for him to have a little sister. They would not get along all the time, but she would help bring out the best in him, that caregiver side that teachers see at school, that we see when he's with his younger cousins. He apologizes to her as well, and then to me.
We pull out our phones to use the flashlight app. We are now walking in the dark. Part of his anger I discover, is that fact that Stella and I were laughing and talking...enjoying our walk together, while he was walking with his IPOD in his ears and not a part of the conversation. He could very well have joined the conversation, but chose to get angry instead.
This girl is so smart...so funny and such a grown up little soul. She is growing up with her single-mom. I think spending so much one on one time with an adult has made her grow up faster than your average girl.
"I know you would rather have a little girl mom." He is only partially correct. I would love to have a little girl not instead of him, but in addition to him and his brothers. I tell him this. I don't think he believes me. One thing about it...we will never find out for sure. The only little girls I will have, will be borrowed.
He is completely argumentative and combative. He accuses her of arguing with him to which she replies, "I'm not arguing. I'm just trying to have a conversation!"
Ah hah! This is the exact sentiment I have all the time when I am trying to talk with Blue and his father. If you are not in complete agreement with them ..thinking the very same thoughts, in his mind you are arguing with him! Finally, I have proof that I am not crazy! I just need another sane person to live in the house with me to help me prove it!
Did I tell you I love this girl?!
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Taking a Break |
"We have to head back now! It's going to get dark!"
He hesitates, but decides to head back in our direction.
Once we are walking together again, the two of them are slightly ahead of me. I here Stell say...
"I'm sorry Blue. I didn't mean to make you angry."
My heart melts a bit. I think...this is what it would be like for him to have a little sister. They would not get along all the time, but she would help bring out the best in him, that caregiver side that teachers see at school, that we see when he's with his younger cousins. He apologizes to her as well, and then to me.
![]() |
Skye and Harry in the dark |
We pull out our phones to use the flashlight app. We are now walking in the dark. Part of his anger I discover, is that fact that Stella and I were laughing and talking...enjoying our walk together, while he was walking with his IPOD in his ears and not a part of the conversation. He could very well have joined the conversation, but chose to get angry instead.
This girl is so smart...so funny and such a grown up little soul. She is growing up with her single-mom. I think spending so much one on one time with an adult has made her grow up faster than your average girl.
"I know you would rather have a little girl mom." He is only partially correct. I would love to have a little girl not instead of him, but in addition to him and his brothers. I tell him this. I don't think he believes me. One thing about it...we will never find out for sure. The only little girls I will have, will be borrowed.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago