I am thrilled to announce this Guest Post from Flannery @ Life on the Spectrum: The Connor Chronicles Flannery is a hilarious, cut-the-crap, honest writer. You can not read one of her posts without laughing, crying or both simultaneously. Her son5 year-old son Connor has severe ADHD and mild Aspergers. Please go CHECK OUT HER BLOG if you have a need to smile.
Don't forget to go visit Flannery @ The Connor Chronicles
If you are new to the blog...we have a great community on Facebook...please stop by and join us. We come we wine...I mean whine, we celebrate ask questions and celebrate the journey of raising these special kids. Just click HERE!
The sun is shining brighter, the air smells delicious, and there’s a bounce in my step from walking on fluffy, cotton-candy clouds. I’m as giddy as a tiny sprite, visiting the Magic Kingdom for the first time.
All this boundless love and cheer is sponsored by: THE START OF A NEW SCHOOL YEAR!!!!
Yay for school!! No more summer camp! No more phone calls before noon, to pick up my unruly child! No more walking in and seeing camp counselors holding ice packs to their swollen, red shins (true story). No more living in fear that will lose my mediocre-at-best job!
The people at school know what they’re doing. They have a handle on things, damn it. I have acronyms that guarantee they have to work with my child; IEPs and BIPs and there’s even an IRI. These people know what they’re doing and can handle shenanigans.
And as the first week of school draws to a close, the bliss is that much sweeter because it was a GOOD week. What’s that you say? A good week?? How long has it been since we’ve had one of those??
Well, since school ended, basically.
After the first day, which was all-day at extended care, there were no more incidents of hitting or biting. And this makes me happier than a stoner at a Grateful Dead concert. You know that super-annoying, repetitive, makes-you-feel-like-you-want-to-blow-your-brains-out smurf song??
“La, la, la-la-la-la, la, la, la, la-la!!”
Yep, that’s what’s in my head.
That’s not to say the week went off without a hitch. That would just be crazy-talk. There was this small incident, that happened two days in a row. It seems my son is working very hard on the concept of humor, and thinks it’s hysterically funny, during extended care, to come out of the bathroom with his pants down.
“Hahahahaha, heeheehee, his pants are down, that is SOOOOOOOOOO funny!!!” That is what’s going on in his head during this escapade.
Now of course we talked to him about this being inappropriate, and really not funny or okay. But after all, he is a six-year-old boy, so it’s rather hard to convince him that having your pants around your ankles isn’t the funniest thing since Jim Carrey bent over and talked with his butt cheeks.
Wait, that gives me an idea for behavior replacement...
Wait, that gives me an idea for behavior replacement...
Luckily he listened, and this has stopped, at least for now. I can’t help but think he’s channeling his inner Steve Martin, and may have some kind of future in comedy.
But honestly, if I hear “Mommy, look at my butt” one more time, I’m sending for Chris Rock to come and “whoop his ass!”
Don't forget to go visit Flannery @ The Connor Chronicles
If you are new to the blog...we have a great community on Facebook...please stop by and join us. We come we wine...I mean whine, we celebrate ask questions and celebrate the journey of raising these special kids. Just click HERE!
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago