2:20 a.m.: Thunder rocks our house as if the cloud was right on top of our roof. My heart is beating rapidly. I am suddenly wide awake. The wind is blowing the rain begins to pour. There is a mad knock on my bedroom door, almost as loud as the thunder. My heart rate again rises. It's my son who knocked so loudly and then ran away screaming, "Mom! There's thunder!" No kidding?
He wants me to come into the bathroom with him. I tell him, being in the bathroom isn't going to change anything. There's nothing we can do. We need to just lay down and try to relax until it's over. He brings up the radar on his Ipod. We turn on the television to see what we're dealing with. We assess that the worst of it will be over in about 15 minutes. When things settle down, I request that he lay down and try to go back to sleep.
6:45 a.m. Alarm clock goes off. I try to rouse the troops. I tell Blue that the storm has passed. It's time to get dressed. He starts to cry hysterically.
"I can't do it! I can't go to school. I can't walk around all day going from class to class! I can't focus! I'll just be worrying all day. Please! Please leave me alone!" He refuses to leave his safe place. He refuses to get ready for school.
7:30 a.m. -I call to cancel the bus. I leave a message for the LSSP (Licensed Therapist in School Psychology) to let her know that my son is refusing to come to school because of the storm.
8:00 a.m. I drive my teenager to the high school. I am so exhausted. I'm working really hard to keep my eyes open and stay focused on the road.
8:30 a.m. -I lay down to rest until I hear from the middle school.
9:30 a.m. -LSSP calls....she talks to my son on the phone. By this time, he is a little more rested and is calm. She tells them that it's only sprinkling up there. There is a game plan for him to work in the social skills room, his work will be brought in. He agrees.
10 a.m. -I drop him at the middle school. I am assured that he's in good hands an will be fine.
10:15 a.m. - I arrive at the high school for a meeting with yet another LSSP and special education teacher. We discuss the game plan for my high school son who has been refusing to ride the school bus. I happen to run into the campus officer. I introduce myself. We have a lovely conversation. He tells me he will be glad to come and get my son and escort him to school should I have problems in the future. He gives me his cell phone number. Lovely!
11:30 a.m. -I leave the high school. I an starving! I realize OMG I had coffee but forgot to eat! I to Panera Bread for soup, sandwich and a cold expresso frozen caramel drink. The sugar and caffiene is still not enough to wake me up and make me feel sane.
12:30 p.m.: I come home and hit the to do list. I don't make it very far before I lay down.
3:00 p.m. I head off to the high school to pick up my son for a therapy appointment.
3:15 p.m. From the car I call my behavioral health plan to get referrals for a Pediatric Psychiatrist. There are a whopping three choices in the entire Austin area.
3:30 p.m.: I stop by Pediatric Psychiatrist office (they are next door to the therapist). I beg for an appointment for an evaluation for my youngest son. His anxiety and explosive levels are through the roof and are definitely interfering with our everyday life and routine. They write down my information and say they'll get back to me. There is a 70 person waiting list. They may give me priority since my older son is already a patient.
4:00 p.m.: I sit through a therapy session with the teenager. It is shear torture for the most part. He does have at least one epiphany. He doesn't want his typical friends to see how angry he can get. He walked away from a potentially explosive situation when someone told him he couldn't sit at a particular table during lunch. This is good stuff!
5:00 p.m.: Session is over -I call my husband to see if he is going to make it to take the middle schooler to his private art lesson. He says, "I think I can make it." I can't rely on think. I hightail it across town to pick him up myself.
I send husband a text message which says, "Dude -don't ever tell me I don't have full-time job!" He replies, "O.K."
6:00 p.m. -Pick up and drop off to art lessons. I'm exhausted, overwhelmed, pissed off, stressed out, feeling a little explosive my damn self! I call hubby and ask him can he at least honor the commitment of picking up our son from art lessons. I just want to disappear for a while. He agrees.
6:15 p.m.-I arrive at happy hour...at my favorite place -alone. I pull up to the bar with the rest of the alcoholics and order a Chambord Rita and grilled shrimp tostada bites. I make small talk conversation with the friendly drunks sitting next to me. It's fun. I'm not the least bit embarrassed that I'm a married woman alone in a bar.
I send a text to hubby that says, "I'm at a bar picking up strange men. :-D" He replies, "Not Funny!" It's funny to me.
6:45 p.m. -While sitting at the bar, a call comes in on my cell from some old friends that I have reconnected with via facebook. They are in Dallas for a fotball game. This is three school friends from my middle school years. They are of the male species. All are handsome and as sweet as ever. All very much married and have children. They remember me as "k-dub" the fun girl with no worries. It's great to be taken back to happier days for a moment. This is by far the highlight of my day.
7:30 p.m. -I leave happy hour and head to the mall. I just don't want to go home and face my family. Spending money usually makes everything better...at least temporarily. Somehow today, it doesn't have much effect. I only buy facial products and makeup. I need it to hide the misery and age on my face.
9:30 p.m. -I return home and am glad that hubby took the middle school son to a football game. I hide away in my room getting ready for bed.
11:00 p.m. -I drift off and sleep like a newborn baby.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Saturday, September 4, 2010
Adventures in Delirum
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago