Yesterday was just so much fun...I'm beside myself. We started off with a major meltdown over MILK! It wasn't exactly spilled. In fact, it wasn't even poured...just touched and not even really the milk, just the carton. Little Boy Blue went out to Walgreens a few days ago to buy his very own milk because he was sick and tired of his older brother "wasting too much milk, and eating too much cereal!" Does Blue usually buy this milk and cereal? No. Is it any of his business how much his brother eats? Absolutely not. Does that matter? No.
'14' wanders down the stairs and stumbles towards the refrigerator. He absentmindedly reaches into the refrigerator and picks up the first carton of milk he sees. Blue went ballistic! "YOU TOUCHED MY MILK! YOU bleep di bleep, di bleep!" Not actual curse words but very unattractive, inappropriate words coming out of the mouth of an 11 year old with his 70 year old grandmother present. I couldn't hear the specifics....I just heard yelling like someone was being maimed and killed.
I dash down the stairs, snatch up Blue and make him march up the stairs. He's now in full meltdown stage. Yelling and screaming things that don't make any sense. He hates the entire world! He wants to get out of this house! "I want to go live in a foster home! I can't stand being in this family! Nobody loves me!" You name it. There was nothing that I could say to defuse the situation. Everything I said was misinterpreted. Therefore, I opt to say nothing. He screams, "Why aren't you doing anything to help me? What kind of mother are you?!" Wow! Un-freakin-believable! He is visibly trembling, his fist are balled up, his breaths are shallow, the tears are flowing. I urge him to take deep breaths. He is not to be able to do it. I coax him into lying on the bed and allow me to rub his back so that he can relax and take deep breaths. Finally, he does. He is actually calm for a few moments.
I leave him lying on the bed...still seething, but a little more relaxed. Somehow he starts talking and the next thing I know he's crying again, inconsolably. I see the pain. I feel it running through my veins as it runs through his. I ache with him and for him. I hug him tightly and apply deep pressure to his body. Finally he calms. I put on a movie to take his mind off of his worries and go down to fix him a bite to eat. He had not eaten anything at all that day. I knew that was part of the problem.
During his meltdown -he told me that I don't love him. I know that during these moments he says things that he doesn't mean. It doesn't mean it doesn't hurt. I obviously love him. I spend my entire life taking care of him. But in that moment, he is blind. I tell him, if I didn't love him, I wouldn't try to understand him. When he goes off like that, the ordinary parent who has no training or is in denial of their child's diagnosis, would try to spank him in to compliance. The mere threat of a spanking scares the crap out of him! In desperation at times I use that threat. In fact, I used it yesterday when he tried to leave the room while melting down. He immediately returned -not happy, but he didn't leave the room.
After he came back to reality, we talked and we came to the realization that he is feeling left out by his brother. That is why he has been lashing out. He wants some of his cousins time, without interference by his brother. He also admitted that he needed some fresh air and some sunshine. Once he got these two things, he was good to go...at least for the day.
And all of this was before noon...
Not the expert mom with all the answers...the mom who can't stop looking for them.
Friday, July 30, 2010
Spilled Milk
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Comments by IntenseDebate
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Meltdowns
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago