It started off as one of those typical, hurried, fighting to get him out the door and on the bus kind of mornings. This meant he walked out the door with out taking his medication. I realized it almost immediately, but I was too exhausted to deal with it right away. There have been days where he has gone without it and been fine. This was not one of those days. I had my coffee, took a shower and got dressed and finally headed over to the school.
As was signing in at the school office, my cell phone rings. Guess what? It's the school calling. His teacher tells me that he is having a rough morning and needs to talk to me. What a surprise. I go to the classroom to find out what's been going on. My head starts to spin as I listen to the deplorable things my child has said to another student and the expletives he has used towards teachers and staff. Yes...children with Aspergers have melt-downs in which they go into rage and say things they don't mean. But the things that were said to his peer seemed just mean spirited -deplorable. I was embarrassed to say the least. How could a child of mine be so mean? I am doing everything I possibly can to love support and help him. Therapists, doctors, counselors, grandparents, teachers, all telling him the same thing. Yet his thinking is that we are all wrong. It's the world according to him. Nothing would to be penetrate line of deranged thinking. Their was no remorse for how he was treating this other student. In his mind, the other student was wrong for not being his friend and for being rude to him. His definition of rudeness by the way, is not speaking to him in the same "friendly" way she speaks to others.
I understand the need for social acceptance is huge. He is reacting to what he feels is just another rejection from a friend. What I don't understand the belief that you can change or control others. I don't understand because it doesn't make any sense. Irrational thinking has a tendency to do that. You can get them do behave the way you want them to behave, especially by being mean to them. How could think that would possibly work?
I also have the frustration with the whole medication issue and finding the right combination. The ambivalent emotion about him having to take anything at the same time knowing it is an absolute necessity. Worry about the stigma of all of the above -yet knowing that I don't really have a choice. This day was proof that he needs the medication. However, it did seem that since he started the latest one, he is more irritable and angry. The most simple requests turn into a fight. He is totally unreasonable.
When I call the doctor to tell her what I am noticing, she suggests taking him to the full dosage of the new med. "We are not seeing the result of the full dosage." I'm not a doctor. I'm a mom and to me this didn't make any sense. I couldn't bring myself to take her advice. In fact, I took him off the med all together. I did increase the dosage on one of the other meds as directed by the doctor.
I also kept him home for a couple of days so that I could observe his reaction to these changes before throwing him back into the fire at school. He was on a downward spiral and I could only see it getting worse. He needed a break.
Over the next two days, his demeanor was measurably improved. We went to see his therapist and for the first time in months and he was able to process through his feelings and actions and came to terms with his error in judgment. Something positive finally soaked through his mind and heart. There was once again a glimmer of hope.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Tuesday, March 16, 2010
Full-time Job From 6 to 8 a.m.
Comments (9)

Sort by: Date Rating Last Activity
Loading comments...
Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago