I haven't had the time or energy to write in quite sometime. Of course I've had many experiences and feelings that would be great to explore over the past month or so. But in preparing for the holidays, our travel and my mother's upcoming move to live with us, I just didn't write.
I still believe the term family-vacation is an oxymoron. A vacation should be relaxing. It's very definition --a rest or relief from work. Not. When your job is taking care of children, and you have to take care of two children with Asperger's who do not deal with change easily, there is nothing relaxing or relieving about it. In fact, it is more work because you have to deal with them outside of their area of comfort.
We went to visit grandparents (my husbands dad and his wife). Their cousins also joined us at one point, so there were a lot of people sleeping in one house. Cole who is hypersensitive to sound, had a hard time sleeping on several nights. He doesn't want to sleep next to anyone, which makes juggling the space around even more interesting. Eating someone elses cooking is always a challenge, since they both have sensory issues when it comes to food. Then you have the grandparent's old school mentality, "We don't believe in making all these different meals. All you have to do is...blah, blah, blah. He ate for me. It was no problem. Are you giving in to that?" Of course no one is watching as they are literally gagging from the texture of mashed potatoes.
The good news is they did respond positively to their grandparents. I don't know if it was fear of what may happen if they didn't do as they were told, or just a greater desire to please them and look angelic in their eyes. Of course, that makes me look at myself and question weather or not I am actually doing a good job parenting them. Why can't I get them to eat their vegetables without the look on their faces as if I'm feeding them worms? Do I give in too much? They know I love them as much as the day is long -so are they taking advantage of me -playing me like a song on the radio? Probably to a degree.
So since we've been home, I've been cooking more and insisting that they at least eat a few bites of their vegetables. I am trying to make their meals a little healthier and cutting down on the fast food. No matter what I do, they still are not on their best behavior for me. I suppose that I can count it as a blessing that they do know how to pull it together with extended family and friends. No matter how I change my parenting style, they will always know that I am their mother and will feel more relaxed to be their most terrible selves for me exclusively.
Most people share the best and the worst part of themselves with those who love them the most. It's a part of that unconditional love that we share. Aren't I lucky?
Not the expert mom with all the answers...the mom who can't stop looking for them.
Friday, January 15, 2010
Family Vacation -the Oxymoron
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Adelaide Dupont · 284 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 208 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 111 weeks ago